New Discount Program for UVB Narrow Band Phototherapy Products

Members of the NVFI (National Vitiligo Foundation) can now enjoy significant discounts, up to 10% on selected UVB Narrow Band Phototherapy Products, including the Dermalight 80, the Dermalume 2X, the Handisol II, Panosol II and Panosol 3D products as well as the Foldalite III.

This is a new program, and only members of the National Vitiligo Foundation (Free Membership) can take advantage of this new program that offers discounts as follows:

  • Panosol Products – 10% Discount.
  • Handisol II Panel – 10% Discount
  • Foldalite III – Flat Rate $500.00 Discount.
  • Hand/Foot Units – 10% Discount.
  • Dermalume 2X Wand – 10% Discount
  • Dermalight 80 Hand Held Wand- 5% Discount.

To register with Amjo for this discount please:
Visit http://www.homephototherapy.com/nvf/

We hope to see you there!

Good Luck

Chris Cane
chris@amjo.net

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Posted in Focus, NVFI News, The UV Guy's Ramblings, UVB Narrow Band Products | Leave a comment

Medicare and Vitiligo

It’s unfortunate but Medicare do not consider the treatment of Vitiligo as Medically Necessary and do not provide insurance coverage for Home UVB Narrow Band systems. Medicare does provide some coverage for home UV (Ultraviolet) systems for the treatment of Psoriasis but not Vitiligo.

For Psoriasis one of their documents reads “For Ultraviolet Cabinets: >Covered for selected patients with generalized intractable psoriasis. Using appropriate consultation, contractor should determine whether medical/other factors justify treatment at home rather than at alternative sites, e.g., outpatient department of a hospital.”

Cigna and Aetna also exclude coverage for UVB Narrow Band Systems for the treatment of Vitiligo.

Related articles:

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With Vitiligo, why are my hands and feet so difficult to re-pigment?

One of the unfortunate facts about re-pigmenting Vitiligo patches is that one normally needs a few melanocytes to be present for “healing” or repigmenting to begin. The last remaining melanocytes are typically gathered in the hair follicles on our bodies and we have very few on on our hands, feet, elbows and knees. Continue reading

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NVFI Names Heather Marsh Volunteer of the Year

Heather Marsh

Heather has been volunteering with the National Vitiligo Foundation for several years now. As a volunteer she has spent many hours creating thousands of mailings to keep NVF members informed of Foundation activities and progress, and to help with fund-raising for the Foundation

Heather works as a special education teacher in the greater Cincinnati area. She is very passionate about finding a cure for Vitiligo and other skin diseases. She has seen firsthand how skin diseases hurt the self-esteem and psychological well-being of children, close friends, and even her own husband. Stories of children being discarded or abused by parents, or the children committing suicide because of their physical appearance, are part of what motivates her to take action and be involved. Heather believes that until we find a cure, providing support and educating the public to drive awareness will help save many lives and help bring acceptance for millions around the world.


I have known Heather and her husband for many years and if asked I would have seconded Heather’s nomination, This is great news.

Chris Cane
The UVGuy

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Vitiligo and Black Light (Woods Lamp)

Typical Woods Lamp

One of the unique things about Vitiligo is that the areas where the pigment has been lost because of Vitiligo glow or fluoresce under a Woods Lamp sometimes called Black Light. A typical Wood’s Lamp generates UV light at 365 nm (nano-meters) and can be used for many applications. When you’re watching those police shows on TV where forensic teams look for blood and other body fluids such as sperm, you are actually seeing the use of a Woods Light.

Professor Robert Wood

A little back ground. The Wood’s Light is named for Robert Wood. Professor Robert W. Wood is is undoubtedly the “Father of Ultraviolet Photography”. His work in the early 1900′s led to the use of UV light for forensic and medical skin and eye detection.

He was the first to record the ultraviolet fluorescence phenomenon which led to the common usage of UV light today for skin and forensic inspection. You can read a little more about Professor Wood at my www.woodslight.com website.

The Wood’s Lamp is used to detect many things today such as:

  • Ringworm
  • Fungus/fungal infections
  • Corneal Scratches.
  • Foreign bodies in the eye.
  • Vitiligo.
  • Blocked tear ducts.
  • Acne.
  • Erythasma
  • Tinea versicolor
  • Microsporum Canis
  • Criminology (for emergency rooms)
  • Scabies.
  • Alopecia
  • Porphyria
  • Bacterial Infections.
  • Many other skin conditions.

Note the bluish glow of the area with Vitiligo that is barely visible under normal light. Image borrowed from Vitiligo Zone

The user should take several precautions such as advising you not to look directly in the ultraviolet light or providing you protective goggles when examining the face. The Woods Lamp examination holds no risk and you won’t feel anything during the procedure.

Your doctor or healthcare provider will ask you to thoroughly wash or clean the area to be examined. Many creams, ointments and soaps contain materials that may fluoresce under black light so they must be eliminated. The inspection must be done in a darkened room. The skin with Vitiligo will glow whereas your regular or normal skin will not react or glow.

Fluorescence is not simply reflected light. Certain materials react to UV (Black Light) and create light when they react or “fluoresce”. Believe it or not, some folks in places like Arizona and the Southwest use black lights to search for scorpions. Yes! Scorpions glow or fluoresce under black light. Here’s a video you can watch of someone hunting scorpions with a black light. <Click Here>. Many minerals fluoresce under black light and many rock hunters will use black light to search for certain materials or minerals.

The company that my wife and I own for many years only sold UVA, UVB and UVB Narrow Band Systems at our www.HomePhotoTherapy.com website and as time went by we got more and more calls on wood’s lights and UVA Black Lights and we decided to create the www.WoodsLight.com website and begin selling woods lights and black lights for a wide range of applications. This has been one of our more successful spin-off websites.

We now carry

Our web store for woods lights can be found at:
http://www.amjoshop.com/category-s/41.htm


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Posted in Focus, Medical Articles, The UV Guy's Ramblings, UVB Narrow Band Products | Tagged , , , , | Leave a comment

AETNA Continues to be a challenge for Vitiligo

One of our challenges as a UVB Narrow Band supplier are Insurance Companies like AETNA that consider UVB NB to be “investigational” when used at home.

Their Clinical Policy Bulletin CBP 0422 Policy dated 4/22/2011 reads “Aetna considers home phototherapy experimental and investigational for the treatment of vitiligo because there is a lack of evidence regarding the safety and effectiveness of home phototherapy for this condition.”

You can read the AETNA policy at their website:
See http://www.aetna.com/cpb/medical/data/400_499/0422.html


AETNA should evaluate studies such as http://www.vithappens.com/index.php/2010/08/narrow-band-uvb-phototherapy-in-150-patients-with-vitiligo/

This really is to put it mildly total crap! There are many studies showing that Vitiligo patients are helped with home phototherapy. Home users over the long run are typically more likely to be “compliant” because they don’t have to go to a clinic three times a week for a very short treatments over a very long time. The burden of visiting a clinic or doctor’s office week after week is costly, and many employers will not tolerate their employees interrupting their work day three times a week.

In a psoriasis study the conclusion by the authors was “Ultraviolet B phototherapy administered at home is equally safe and equally effective, both clinically and for quality of life, as ultraviolet B phototherapy administered in an outpatient setting. Furthermore, ultraviolet B phototherapy at home resulted in a lower burden of treatment and led to greaterpatients’ satisfaction.” In my years of experience, the same is true for people with Vitiligo. Read more at http://www.vithappens.com/index.php/2010/07/comparing-home-to-outpatient-uvb-phototherapy

Let’s hope that AETNA and CIGNA that has a similar policy come out of the dark ages soon.

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High School Student, Brendan Muha Studies Vitiligo

I always enjoy reading the “President’s Message” from the NVF (National Vitiligo Foundation). Dr. Ray Boissy, the NVF president prepares this every quarter. The one issued last week was particularly interesting in that a high school student is the focus of the message. I think you’ll be surprised as you read on. Continue reading

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Posted in Focus, Medical Articles, Research | Tagged , , | Leave a comment

Vitiligo: current medical and scientific understanding.

Dr. James J Nordlund

Dr. Boissy

This year Doctor Raymond Boissy and Dr. James J. Nordlund both here in Cincinnati published a paper entitled “Vitiligo: current medical and scientific understanding.” It was published in the Giornale Italiano di Dermatologia E Venereologia in February of this year.

Abstract:

Vitiligo is a relatively common acquired skin depigmentary disease with a complex presentation, therapy, and etiology. Both the prognosis and therapeutic response for patients with vitiligo is unpredictable. Multiple current therapies exist however the efficacy of these are not optimal. The cause of vitiligo appears to be a combination of genetic effects in both the immune system and the melanocyte itself with a precipitating factor instigating their interaction and resulting in the melanocyte destruction. Headway is being made in understanding the etiology of vitiligo that should culminate in new and improved therapies.

The entire paper can be seen at http://www.uvbnarrowband.com/wp-content/uploads/pdfs/2011-Boissy-Nordlund-G-Ital-Dermatol-Venereol.pdf

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FDA allows world first vitiligo drug trial

One of the reasons I have been following this news is rather selfish in that the study does require the use of UVB Narrow Band and we (Amjo Corp) are a leader in the sale of UVB Narrow Band Products for the treatment of Vitiligo, Psoriasis, Eczema and many other skin challenges such as CTCL, Mycosis Fungoides and some forms of Pruritus.

I did post a little about this with a Video in January <Click Here>

The text that follows is borrowed from an article at PharmaLive

“Drug trial in skin disorder affecting 45 million globally to commence in USA, Europe.

A new treatment for one of the world’s most distressing skin disorders is about to commence trials across the USA and Europe. The USA’s Food and Drug Administration (FDA) has agreed to allow a pilot trial of the new drug SCENESSE® (afamelanotide) to determine whether it can help repigment the skin of patients with vitiligo.

Vitiligo is an autoimmune disease which causes patchy loss of skin color in ‘lesions’ which spread over the body. Onset of the disease can be sudden and lesions can spread quickly. Vitiligo affects all races but is most visible in individuals with darker skin. Global studies have shown vitiligo can have a significant impact upon an individual’s quality of life as their skin inexplicitly and dramatically changes color.

SCENESSE®, an injectable which mimics the body’s natural ability to activate the skin pigment melanin, will be trialled in nonsegmental vitiligo; the most common form of the disease which affects over 45 million individuals globally.

The drug will be tested in combination with narrow-band ultraviolet B (NB-UVB) light therapy, a recognised treatment but one which takes up to 18 months of twice- or thrice-weekly clinical visits to return pigment to the skin. The goal of the trial is to determine whether SCENESSE® will reduce the dose of radiation (NB-UVB) and the time required to reactivate skin pigment producing cells in vitiliginous lesions.”

You can read the entire article at http://pharmalive.com/News/index.cfm?articleid=765588&categoryid=21

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Posted in Focus, Medical Articles, Research, UVB Narrow Band Products | Tagged , , , , | 2 Comments

Vitiligo, Differences and Acceptance.

It was not that long ago that I published a video done by Lori and April Mitchell about April’s life with Vitiligo. That video can be seen by clicking <here>. I was visiting my Facebook page today and found that Lori had posted another video at Blip TV where Lori and April discuss people, their differences and similarities.

Vitiligo affects different people in different ways. Continue reading

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